Ireland: Hmmm, probably not a good idea. Grandpa's would just be scribbles because his hands chake so much.
Me: yeah
Ireland: Grandma would just write something weird like, "Time to shuffle off to Buffalo!"
And then there was one... after all our years of having kids in elementary school, Sydney now has the place all to herself! Brigitta moves to middle school next year. Initially I felt like a good parent showing up for the Clap Out until I saw the parents with signs... and balloons... and plans to whisk their kids right off for some celebratory ice cream. Well, we showed our faces at least!
This year I found myself in a bit of a quandary: I wasn't sure if I should call my mom for Mother's Day. Not because I was busy or because we'd argued recently or even because I just didn't want to.
You see, my mother has Alzheimer's and she no longer remembers who I am.
This picture is from our sister's trip to Sarasota, FL in May of 2021. This is the last time Mom was still pretty much Mom. For years my sisters and I had noticed various signs that were clarion calls something was awry. I now realize it was probably many years even earlier still (maybe decades earlier?) that the disease began to manifest itself. We were too slow to pick up on those scarlet flags way back then. Mom became skilled at covering tracks when her memory failed her. She oh so cleverly smoothed over oddities in dialogue, pivoted entire conversations and joked things off to camouflage it all. My gosh she became a master of disguise! Meanwhile there was a detritus that was relentlessly diminishing her cognition day by day.When I was a child and we learned a new song in Primary or memorized a Scripture Mastery Scripture in Seminary, I remember the teacher writing the words on a chalkboard. We'd say it in unison and a lucky someone would get to go up and erase a few words. We'd repeat it and then someone else got to erase a few more words. We'd do this over and over until the blackboard was blank and we'd magically have it memorized. By then we could say the whole thing, perfectly unaided.
That is what Alzheimer's is like- I'm watching my mother be erased. Slowly at first- maybe just an "and" or "the" but the essence was still there. Then the big words, the significant words, that bring home the meaning are wiped away and it gets so much harder. My mother is becoming the empty blackboard and I hope to God I have been an attentive and witty child who can recite what was once there. Small things, like how she was so happy on that beach in Sarasota. Big things like the fact she is my mother. But am I truly someone's child when they can't acknowledge their parentage anymore? I can't help but feel on this Mother's Day the disease has made a bastard of me, as I stare into the void of that stark, bare blackboard.
The Alzheimer's is tragic enough but it's so much worse than that. My parent's independence and stubbornness over how they want to live out their sunset years has kept me awake at nights crying. Mom has developed some anorexia and kleptomania to boot- as if the Alzheimer's wasn't bad enough. "Sandwich Generation"- that's what they call those of us trying to walk the slippery slope of our own young children and our elderly parent's increasing demands for care. "Vise Generation" would be more apropos of what it is really like. I'm slowly being crushed on all sides while the vise tightens a bit more and a bit more.
I can't even remember what life was like before the constant dread, despair and depression over my aging parents. I feel as if I live with a giant axe over my head, which at any moment it is going to swing down on me- one swift motion full of pain and damage. It's like that moment at the top of the rollercoaster when you realize the drop is much more steep than you anticipated and you can already hear some screams of terror but you are strapped in and there's no way back, no way off the ride. Choice is no longer your luxury- you must go through with this whether you like it or you absolutely do not. I'm exhausted all the time from the pervasiveness, permanence and pronounced nature of the disease and my parent's decisions.
I swear I'm not just being maudlin. I've fielded so many calls from concerned friends and family. Maybe someday I will chronicle all it took just to get Mom diagnosed. That was a debacle of epic proportions, I promise you. I spent one morning sobbing incoherently to a counselor with the Alzheimer's Association and then spent the second half of the phone call frantically apologizing for laying all my heavy burdens at her feet. This. Is. So. Hard. There's no upside, there's only decline. We all know how this ends, right?
Recently my parents visited and I noticed Mom referring to Dad as "this guy" and "that one there" and I realized she didn't know who he was either. I casually asked her about the man seated across the table from her and she brushed it off. Perhaps I should have left it alone but I continued to dig. After repeated inquiries, eventually Mom said Dad was "the most important man in my life" and a bit later "my husband". When I pressed for his name, she hedged and said it was an unusual name. At long last, with a fake Danish accent I suppose she meant to be funny, she rolled out Richard Bruce Nielsen. Mom arrived at the destination but oh the detours we took for her to remember the man to whom she is attached at the hip is her eternal companion! It was heartbreaking. I don't know if I will ever get over it.
Did I call her for Mother's Day? No, I did not. Mom is still a pleasant person but I can tell it distresses her a bit when I call her "Mom." A whole conversation on the topic would have been unnecessary and unkind. Instead, the girls put together a little dance to Tina Turner's song Proud Mary. I know Mom and Dad like that song and even if she didn't recognize the girls in the video, she could at least be entertained a bit.
It's so odd to mourn the loss of someone who is physically still here.